Death is Inevitable. Living a life we can be proud of is something we can control.
I didn't want to be one of those people who was resentful. The moment you start saying to people that their lives must be miserable because they're sick, you give their sickness value over them.
I want to show people that the hospital does have its moments. The hospital is just a place, and even though it does have fluorescent lighting and white walls, it doesn't have to be a miserable experience.
If my biggest problem in life was to be healthy, I'd be incredibly bored.
A lot of people say when you get a short life span you want to go out and do all of this crazy stuff like go bungee jumping and travel to exotic places. But you just want to live.
What happens when you have an illness where you're never going to be healthy? Does that mean I'm never going to have a life? Am I never going to do anything or be anything other than a sick kid?
My purpose is to help people be more comfortable with their pain and realize that they have power and a lot to give regardless of whether their life seems normal or not.
I was only 13 years old when I was forced to face the fragility of my own life. A routine surgery landed me in a medically induced coma for two weeks with a mere 1% chance of surviving. But survive I did.
When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. I would move the furniture around to create space on the floor, throw down some sheets and indulge in any form of art that I could get my hands on.