Much of the legend surrounding my mother is true. She was a beautiful, talented, warmhearted woman who had the greatest sense of humor. At the same time, she was a sharp, fiery lady who was full of spunk and had a flashy temper.

When I went to university, I was a music major. Timpani was my specialty, and voice.

I was born in Lausanne, Switzerland, and we lived there for three to five years - with my mother and father. And then they divorced and she came back to America.

I was going to go to Europe to study, and that's when my mother's disease heightened, and it was really necessary that I step in. Then I said, okay, this is more important than my career in music.

The Alzheimer's Association in the United States, founded by Jerome Stone, they found me because they had heard rumours that my mom was diagnosed. Jerry said, 'We're a small family group, and we would like to know if you'd like to join us and to spread the word about this disease.' I said, 'Absolutely.'

I came to New York after Bennington College and trained as a singer. I lived on the West Side and I went to my voice lessons. That was a wonderful part of my life and I really thought that I could go somewhere with my voice.

They can become very irritated. They can become very aggressive. Not all Alzheimer's patients are that way, but many are. My mother was very difficult. She had extreme mood changes and would become fearful.