My disability exists not because I use a wheelchair, but because the broader environment isn't accessible.
Disability doesn't make you exceptional, but questioning what you think you know about it does.
I am not a snowflake. I am not a sweet, infantilising symbol of fragility and life. I am a strong, fierce, flawed adult woman. I plan to remain that way, in life and in death.
The killing of a disabled person is not 'compassionate'. It is not 'euthanasia'. It is murder.
I've lost count of the number of times that I've been approached by strangers wanting to tell me that they think I'm brave or inspirational, and this was long before my work had any kind of public profile.
I currently live independently without any funded support. I'm educated, and I'm employed. I enjoy paying my taxes and contributing to the economic life of Australia.
I really love filling out forms - quite fortuitous, really, given that as one of Australia's 4 million-ish disabled people, ticking boxes and recording my life for other people is what I've spent a fair chunk of my time doing.
The magnitude of discrimination and stigma faced by people with disability in Australia cannot be underestimated. People do not understand disability, and people fear what they don't understand.
I use the term 'disabled people' quite deliberately, because I subscribe to what's called the social model of disability, which tells us that we are more disabled by the society that we live in than by our bodies and our diagnoses.
Disability simulation fails to capture the nuance and complexity of living in a disabled body. And it certainly fails to give a deep understanding of systemic discrimination and abuse faced by disabled people.
I don't generally talk about medical terms when I discuss my position as a disabled person. I take a social rather than medical approach to disability, and so long Latin names for congenital conditions are not relevant.